Age sees the kids - with good news

Small steps is what we are all after- and it was wonderful to be able to see Age so happy to see the kids tonight.

They miss their dad so much...

Some great news received today was that he may be transferred to Eden Rehab as soon as Monday... So at least then it will only be a forty min drive one way to visit , rather than three and a half hour one way..

After the medical meeting.. News of sorts..

Had a very drawn out and long meeting today with every professional who had letters behind their name about the biopsy and future medical options for Age.

Cutting straight to the chase - The Good News- the biopsy shows that tumour is still a grade 2... Even though it is huge. So big victory dance deserved here!!

Bogus news is that its pressing on a number of places in his brain, behaviour, decision making, maths reasoning ... As well as motor on the right side and speech - making surgery not such a great option.

Bad news is based on the medical options available is basically chemo.. Which we are both violently against. 

Surgery and radiotherapy not safe options as far as they are concerned. The whole team meets on a Thursday to discuss cases, with. Adrian's one of the first on the agenda as he is up for 'release' yay!

Once he is discharged, he will be transferring to the rehab centre at Eden Private hospital. I was supposed to meet with the team today, but they got caught up and we didn't end up crossing paths.

I finished off taking the rest of his stubble and beard. I'm sure everyone will get used to his new look.. I caught a few shots of him after kidding round with him..

Age keeping chipper

Ask anyone who has been in hospital for any length of time, and they'll tell you there is a point you want to climb walls. Age has been in for over three weeks now, and though feeling ok, has no definitive  discharge date yet.

He has had a few minor set backs with recovery, but remains positive... A hard thing to do in any situation, exasibated by  the lack if information disseminated to him. As he is not able to speak at a regular rate, people not used to it will just limp him in as non verbal - which is, as you can image, very frustrating for him. I can vouch that he is absolutely himself in his thoughts, it just takes time and patience for him to express it.

As he is not able to shave to his high standards - and upkeep his beard, he has decided to lop it all off. So despite my protests, i helped him shorten it. I'd hoped he would keep it short at least, but in the shower, he decided to have another go at it. He will know I am teasing him now as I tell you that he looks like he has been in a scrap with a tomcat.. Anyway, the next photos I take of him will be him clean shaven. I need to get some good blades to do it.

He says by tomorrow that he will have it completely off.

His scars continue to heal. So perhaps its time for him to begin the rumours of a bear or shark attack..

Anyways, he is still chipper, loves visits by friends - even if he cant say much.. Bring a story and or some chocolate!